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Hemochromatosis Awarness

I thought I could do a bit of awarness about that stuff.....


 

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I thought I could do a bit of awarness about that stuff.....


 


bertrand hubert rAug 16, 2013 @ 18:28
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Re: Hemochromatosis Awarness
Post 1

and of course the Youtube thing didn't work...


 


https://www.youtube.com/watch?feature=player_embedded&v=UeRr-S2aWrY

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and of course the Youtube thing didn't work...


 


https://www.youtube.com/watch?feature=player_embedded&v=UeRr-S2aWrY


bertrand hubert r, Aug 16, 2013 @ 18:30
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Re: Hemochromatosis Awarness
Post 2

This is an interesting topic.  I've heard that some people have this condition and never realize it until after they eliminate gluten from their diet.  It seems they may have non-celiac gluten sensitivity and their iron absorption is inhibited due to chronic gut inflammation.  Remove the gluten, the gut heals; suddenly too much iron.

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This is an interesting topic.  I've heard that some people have this condition and never realize it until after they eliminate gluten from their diet.  It seems they may have non-celiac gluten sensitivity and their iron absorption is inhibited due to chronic gut inflammation.  Remove the gluten, the gut heals; suddenly too much iron.


richardm, Aug 16, 2013 @ 19:49
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Re: Hemochromatosis Awarness
Post 3

A simple blood test will tell you if you have it or not. If so a monthly visit to the hospital to basically suck the blood out of you Tongue out will bring back the iron level to normal. If left undiagnosed, it will lead to liver failure, cancer and all the fun stuff...


It usually runs in a family.


 

The text you are quoting:

A simple blood test will tell you if you have it or not. If so a monthly visit to the hospital to basically suck the blood out of you Tongue out will bring back the iron level to normal. If left undiagnosed, it will lead to liver failure, cancer and all the fun stuff...


It usually runs in a family.


 


greg m, Aug 16, 2013 @ 23:55
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Re: Hemochromatosis Awarness
Post 4

I want to say something It's not too relevant but...anyway


Please be careful with the use of Vitamins & Supplements!!!! 


I mean it!!!!!


It is perhaps understandable that there is a widely held perception that vitamin deficiency is the only concern. In fact, vitamins can be taken in excess and we should be aware of the problems from hypervitaminosis which, although uncommon, do occur.


Generally speaking, any excess of water-soluble vitamins is excreted in the urine. However, fat-soluble vitamins can be toxic in excess. 

The text you are quoting:

I want to say something It's not too relevant but...anyway


Please be careful with the use of Vitamins & Supplements!!!! 


I mean it!!!!!


It is perhaps understandable that there is a widely held perception that vitamin deficiency is the only concern. In fact, vitamins can be taken in excess and we should be aware of the problems from hypervitaminosis which, although uncommon, do occur.


Generally speaking, any excess of water-soluble vitamins is excreted in the urine. However, fat-soluble vitamins can be toxic in excess. 


Nicole R, Aug 22, 2013 @ 14:08
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Re: Hemochromatosis Awarness
Post 5

I want to say something It's not too relevant but...anyway

Please be careful with the use of Vitamins & Supplements!!!! 

I mean it!!!!!

It is perhaps understandable that there is a widely held perception that vitamin deficiency is the only concern. In fact, vitamins can be taken in excess and we should be aware of the problems from hypervitaminosis which, although uncommon, do occur.

Generally speaking, any excess of water-soluble vitamins is excreted in the urine. However, fat-soluble vitamins can be toxic in excess. 


Aug 22, 13 14:08

Hear, hear.


Ritchie

The text you are quoting:

Hear, hear.


Ritchie


Ritchie, Aug 22, 2013 @ 14:35
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Re: Hemochromatosis Awarness
Post 6

I thought I could do a bit of awarness about that stuff.....

 


Aug 16, 13 18:28

Thank Bertrand. I am a carrier of this and found out I had the condition last year. My nephew was diagnosed with it last year so my sister and her husband were checked and found they were both carriers (1 in 100,000 chance). 


As it's something that won't show up in any blood test unless you specifically ask for it, many people go undiagnosed. However, once you are aware you have it and get monitored every 3 to 6 months there's nothing really to worry about. Just a little bit of diet modification.


http://www.haemochromatosis.org.uk/pages/inheritance.html


Although I can't stress enough - next time you have a check up there's no harm in asking for this simple test just to be on the safe side.

The text you are quoting:

Thank Bertrand. I am a carrier of this and found out I had the condition last year. My nephew was diagnosed with it last year so my sister and her husband were checked and found they were both carriers (1 in 100,000 chance). 


As it's something that won't show up in any blood test unless you specifically ask for it, many people go undiagnosed. However, once you are aware you have it and get monitored every 3 to 6 months there's nothing really to worry about. Just a little bit of diet modification.


http://www.haemochromatosis.org.uk/pages/inheritance.html


Although I can't stress enough - next time you have a check up there's no harm in asking for this simple test just to be on the safe side.


Rich, Aug 22, 2013 @ 14:40
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Re: Hemochromatosis Awarness
Post 7

Rich, how did you find out?

The text you are quoting:

Rich, how did you find out?


richardm, Aug 22, 2013 @ 16:57
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Re: Hemochromatosis Awarness
Post 8

Rich, how did you find out?


Aug 22, 13 16:57

If you look on the link, it says if your siblings have it, you have a 1 in 4 chance of also being a carrier. My sister told me so I got a quick blood test done. I'm really grateful to her as going undiagnosed is where you really end up with problems!


If you get it done then you have to specifiy that is what you're being tested for, it's not very common here but is - for some reason - known as the Celtic curse or Irish disease as it has a high rate amongst Scottish or Irish people.


Good luck!

The text you are quoting:

If you look on the link, it says if your siblings have it, you have a 1 in 4 chance of also being a carrier. My sister told me so I got a quick blood test done. I'm really grateful to her as going undiagnosed is where you really end up with problems!


If you get it done then you have to specifiy that is what you're being tested for, it's not very common here but is - for some reason - known as the Celtic curse or Irish disease as it has a high rate amongst Scottish or Irish people.


Good luck!


Rich, Aug 22, 2013 @ 17:09
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Re: Hemochromatosis Awarness
Post 9

 


Ooo er ...


Is malt the culprit ?  ‘Cos I had my first taste at the age of six weeks.


R.

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Ooo er ...


Is malt the culprit ?  ‘Cos I had my first taste at the age of six weeks.


R.


Ritchie, Aug 22, 2013 @ 17:29
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Re: Hemochromatosis Awarness
Post 10

Thank you so much for open this Thread bertrand, and Im gonna ask my family doctor whether I have done this already if not then subito.

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Thank you so much for open this Thread bertrand, and Im gonna ask my family doctor whether I have done this already if not then subito.


Dorothy W, Aug 22, 2013 @ 21:37
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Re: Hemochromatosis Awarness
Post 11

You're welcome.


I know I have since 3 years, and I start to have some problems due to that illness....  nothing serious but it's anoying.... 

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You're welcome.


I know I have since 3 years, and I start to have some problems due to that illness....  nothing serious but it's anoying.... 


bertrand hubert r, Aug 23, 2013 @ 06:45
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Re: Hemochromatosis Awarness
Post 12

Interesting presentation.  Seems to make a good case for blood donations, regardless of iron overload status. 

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Interesting presentation.  Seems to make a good case for blood donations, regardless of iron overload status. 


richardm, Aug 25, 2013 @ 21:02
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Re: Hemochromatosis Awarness
Post 13

My mother was recently diagnosed, so I got the blood tests done.


No sign of anything unusual for now, but as you say ... another good reason to give blood.  The thing is, I'll need to wait till I visit the UK as they don't accept donations over here from people who lived there during the Mad Cow years. Embarassed

The text you are quoting:

My mother was recently diagnosed, so I got the blood tests done.


No sign of anything unusual for now, but as you say ... another good reason to give blood.  The thing is, I'll need to wait till I visit the UK as they don't accept donations over here from people who lived there during the Mad Cow years. Embarassed


Les_, Aug 25, 2013 @ 22:12
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Re: Hemochromatosis Awarness
Post 14

blood donations can be a good things. In Switzerland there's some restrictions about it and my blood is destroyed...   This sucks, blood is so important as they always need more donors....

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blood donations can be a good things. In Switzerland there's some restrictions about it and my blood is destroyed...   This sucks, blood is so important as they always need more donors....


bertrand hubert r, Aug 26, 2013 @ 06:42
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